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💪 Each tool not only enhances accessibility but is essential in positioning my electronic devices optimally to accommodate my neck’s needs and challenges. From tech that supports mobility to gadgets that hold devices at the perfect angle, these items ensure comfort and functionality. Explore the

🌟 Empowerment in Unexpected Places 🌟 This hospitalization was remarkably different and uplifting. Imagine my surprise and joy when many from my medical teams actually remembered me from my previous visits! Last time, I was diligently working on a speech for Word Patient Day with International Pa

For those with chronic illnesses, the word and concept of "pacing oneself" comes up frequently. It's something I struggle with on a regular basis. Often I feel there is a great chasm separating all I wish to accomplish in relation to all I actually accomplish. Over the years, I have learned that

During a recent Amazon Search, I cam across a great discovery..... More main stream Adaptive Clothing lines. With a number of pieces created for people receiving chemotherapy or infusion therapies easy to put on/remove clothing pieces. The later can be used by the individual/s with limited motor ski

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The Art of Resilience: Creative Adaptations and Joy Navigating life with EDS often requires a creative spirit. When my medical conditions shifted my physical capabilities, I was faced with the tough reality that some of my beloved art projects were no longer feasible. Instead of succumbing to f

As so many who have come before, have already established, the inclusion of the Rare Patient Advocates and their voices are vital to the future of the Rare Disease Community as on the whole. For it’s these organizations that are often the thread that weaves together the medical communities, researc

I am being asked more and more frequently what camera & lighting equipment I use in my videography and digital platforms in addition to questions pertaining to my editing and recording software. To create great digital content we must need to take into account the whole production at a high le

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